Monday, May 06, 2013

谦行自写的部落格



自闭症的孩子的其中一个障碍就是在沟通上,
会唱歌,却不会用语言来表达需要;
可以背广告词,但不会使用语言来说一句完整的句子…..
谦行也不例外,会自言自语说一堆的事,却不能对人叙述心里的感受……..

谦行在5岁开始就已经发展语言的能力,却不会使用语言来表达自己。
小时候的他,常常把自己想要的、想表达的、需要抒发的情绪等等全都转于在画纸上。

现年17岁的谦行,在与人做日常生活上沟通是没什么问题,
但在与人讲述自己的情绪或心灵上的需要时,问题就出现了!
当他用语言表达不到真正的意思时,他就会很紧张接着就会更加词不达意了!
这时候的我应该要更有耐心才对,
可是我却~~耐不住性子,会生气也不想听他的解释了……

爸爸想了个让谦行能把自己心里所想的讲出来的办法,
那就是爸爸鼓励谦行把要说的、心里所想的都写下来,写在部落格里!
于是谦行就开始在他自己开的部落格写下他所有的想法!!

我也开始在他自写的部落格里认识他、知道他最近迷恋什么、了解他的心情等。
当然,他常常爱把自己的幻想或迷恋的一些动画人物都写进去多于写自己的心情,
不过,我们就从这里从新再次认识、尝试了解谦行的心灵世界。



P/S: 我已经把谦行自写的部落格放在右边栏,有空也可以去窥探窥探他的心灵世界。
http://goodnewsweeklyupdate.blogspot.com/

谦行的部落格面貌!

有人问过我里头的文字都是他自己写的吗?是的,都是他自己写的,我们不曾帮过他、也不曾替他修改任何一个字,上载文章也是自己来哦。(谦行会说语华,但不会华文字,因此他写的日记都用他最爱的英文。

今年3月不看镜头的谦行及看镜头的妹妹
 


 

9 comments:

  1. 您好,

    最近您孩子的进展还好吗?
    我听说针灸能帮助自闭症的孩子.

    或者你可以去看看他们的网站.
    http://www.thetole.org/

    ReplyDelete
  2. 谢谢你对谦行的关注。
    针灸这方面在谦行4岁的时候就想尝试,
    因为谦行很怕针,所以放弃了。

    谦行的同学有做过几次,
    有点是一点进展也没有,有的是好像情绪有点平稳了,
    总之就不能期望太高。
    自闭症的孩子行为问题及发展有障碍,
    还是在训练他自理,修正行为较为妥当。

    谢谢哦!

    ReplyDelete
  3. Anonymous3:10 PM

    Hi,
    I think 谦行 is been doing very well, You guys have done a good job in training him. I love reading your blog and myself I have a 5 yrs old daughter with high functioning autism and a 15 months old baby boy with developmental delays in speech and hands grapsing skills.
    I really think 谦行 can make a living from drawing comics books in the future, something he will enjoy and have a passion in.
    In USA we celebrate Special needs kids as who they are, everybody is Unique!
    cheers!

    ReplyDelete
  4. 谢谢你的鼓励,
    你们的鼓励会带给我许多的欣慰。

    真羡慕在美国的特殊儿,
    就因着美国的社会能用宽容来待他们,
    使他们也能拥有一个充满希望的未来!

    ReplyDelete
  5. Anonymous2:26 PM

    You are welcome,as I was told by my case Manager(every special needs kid on the state medical long term care will get a case manager), that some of his high functioning clients can even drive and are attending community college now.

    I am wondering can 谦行 attend some sort of community college in msia? I basically think he can go futher after the secondary school. maybe Graphic design? combination of computer software and art.

    ReplyDelete
  6. 谦行在整体来说是高功能的自闭症少年,
    但在学业上却不标清,
    他没上中学,只是去中心自修 Home Schooling 的课程(AOP),
    我只是前3年陪他读,现在已经让他自己慢慢读了,因为越来越深了,我的英文能力应付不来!

    我们这里没有college 可以让自闭症的孩子上哦,
    上个月有个私人机构开放给特殊孩子上课,我开心得不得了,以为谦行总算可以去学院上课了就如你说的 Graphic Design, 原来他们接受的特殊孩子是归类没有行为问题的孩子,如聋哑、肌体有缺陷的等,我就认为Aspergers'的孩子有机会~因为他们基本要求的是特殊学生也必须拥有中学文凭,唉!

    我再看看还有什么途径!其实已经跟两位朋友大略在闲聊是否可以私下授课.....。

    ReplyDelete
  7. Anonymous7:48 AM

    Dont give up, if there's a will there's a way!
    I am wondering whether he can "sit in" the classes in the college, so you just pay for certain classes you want he to study, he may not receive a grade or diploma but he can learn the graphic design skills. Maybe you can try to ask around colleges near your place, there is always nice people out there!

    ReplyDelete
  8. 嗯,谦行是可以静坐在课室的。

    不过,一旦有他不能理解或不合他心意的事,
    他不会察言观色地及合宜地发问,他会打岔又很固执地围绕在一个问题上纠缠不清!
    这在学院里应该是不被允许吧?!

    你的鼓励带给我动力!
    谢谢你。

    ReplyDelete
  9. Anonymous7:41 AM

    Ic, Actually I have the same problem right now with my almost 6yr old daughther, she will keep going on question or throwing tantrums on things that she doesnt like. Like today I told her her summer class will ends tommorow, but she wants the class to end today and have been given her summer school teachr hard time and not wanting to do anything they told her to do! so now i am thinking again, what can I do to prevent this happend again, maybe I should tell her on the last day of the school next time instead of a day before!lol

    ReplyDelete

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